Engagement, Research, and Evidence
Leveraging the National Patient-Centered Clinical Research Network for Better Cardiovascular Health
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- cardiovascular diseases
- electronic health record
- medical record linkage
- pragmatic clinical trials
A deluge of information and new approaches spanning the continuum from discovery to implementation and policy promises to fundamentally alter our understanding of cardiovascular health and healthcare. Although the existing system for cardiovascular research has yielded impressive results, it remains fractured, slow, costly, and hindered by systematic gaps. Further, even when it delivers answers, they are often accompanied by uncertainty about how to interpret or apply that knowledge across different populations. If cardiovascular medicine is to maintain its traditional excellence in innovation and evidence generation, then our current research paradigms must evolve.
At the same time, external forces are affecting healthcare, including the imperatives to improve the value of care by increasing quality and reducing costs, grapple with disparities in care and outcomes, and achieve meaningful integration with other technologies using electronic health data and sophisticated analytics. Also medical practice needs to be reoriented toward considering the needs, preferences, and values of individual patients and consumers instead of focusing narrowly on providing products and services. This approach is especially poignant for US healthcare, whose decades-old reimbursement model is transforming into a more patient-centered system.
These challenges present a daunting prospect. But what if the move toward integrated, patient-centered, accountable healthcare could be harnessed to simultaneously drive improvements in our clinical research enterprise? What if building systems for electronic health data can also provide robust scaffolding for efficient evidence generation while breaking down silos that impede the flow of information and knowledge among all stakeholders, including patients?
Throughout the …