Abstract 14627: Pilot Observational Analysis of Social Media Related to Survivors of Sudden Cardiac Arrest
Introduction: Social media (SoMe) are being used increasingly to discuss acute/chronic health problems; query advice from those (often strangers) with similar diseases; and locate others having shared experiences. SoMe have the potential to create support networks that cross demographics and time zones. While translational research has focused on optimizing the Chain of Survival, resulting in more sudden cardiac arrest (SCA) survivors, there are numerous gaps in understanding how patients experience life after SCA.
Hypothesis: SoMe content (i.e. Facebook (FB) groups) may provide insight into the issues and challenges that SCA survivors deem important to discuss and share. We hypothesized that FB would contain the most active dialogue among survivors of SCA.
Methods: We conducted an observational study of SoMe groups (active within 1 year, posts in English) and content in order to identify media popular for discussing cardiac arrest, themes important to SCA survivors, and an increased understanding of their survivorship. SoMe platforms considered for review included: FB, Twitter, Blogger, WordPress, YouTube, Instagram, and Snapchat.
Results: A search within FB using key words “cardiac arrest” and “cardiac death” uncovered 34 active FB groups meeting inclusion(non-profit, >1 members); 1 additional was found using key words “SCA survivors”. Public groups contained posts about increasing SCA awareness, asking for personal and medical advice, as well as sharing feelings and celebrating re-birthdays. Within Twitter, the same hashtags demonstrated tweets about SCA awareness and advocacy, such as CPR in Schools legislation. Reviewing results from the remaining platforms yielded few meaningful public threads of content (low reach, few likes or comments per post).
Conclusions: Using SoMe to observe how SCA survivors experience life after hospital discharge may provide insight into how hospitals and communities should structure discharge planning and support groups. It is possible additional content is shared only privately and could not be evaluated. SoMe content analysis may offer a foundation for future survivorship research priorities.
Author Disclosures: J. Xiao: None. R. Christensen: None. F. Brown: None. K.N. Sawyer: Other; Modest; Volunteer, AHA Emergency Cardiac Care Science Sub-Committee, Volunteer, AHA Resuscitation Science Symposium Program Committee.
- © 2016 by American Heart Association, Inc.