Letter by Kochilas et al Regarding Article, “Report of the National Heart, Lung, and Blood Institute Working Group: An Integrated Network for Congenital Heart Disease Research”
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To the Editor:
We read with interest the article by Pasquali et al1 exploring opportunities and challenges toward an integrated data network for congenital heart disease research. We fully agree with the authors’ conclusion that there is a need for additional integration and collaboration to understand and improve the outcomes for patients with congenital heart disease. A particular gap that needs to be addressed is the lack of long-term and longitudinal outcomes for this population. To achieve this goal, it is important to …