Abstract 11501: An Assessment of Unmet Needs and Outcomes Important to Patients With Heart Failure
Introduction: Heart failure (HF) is a progressively debilitating disease resulting in functional disability and lower quality of life. Besides responses to quality of life (QoL) scales, the literature contains few studies regarding HF patient-reported outcomes. Given the advances in pharmacological management, as well as other advances in the delivery of health-related services and information impacting the HF patient, additional insight is needed to understand and respond to patients’ perspectives of HF.
Objectives: To identify outcomes that are important to patients with HF and to assess their perceived unmet needs regarding the effective management of HF.
Methods: Focus groups (FGs) were conducted with HF patients in Austin, TX. A diverse sample of HF patients was recruited in terms of disease severity and history, HF treatments, gender, ethnicity and socioeconomic status. A FG guide with open-ended questions was used to explore three areas: disease burden, important outcomes of treatment and care, and strategies to address unmet need. A grounded theory approach was used to inductively analyze and identify the categories/themes that emerged from the data.
Results: Four FGs were conducted with a total of 29 HF patients. Most patients were male (58.6%) and Caucasian (41.4%) or African American (37.9%) and aged 60.2±10.3 years. The mean number of years since being diagnosed with HF was 5.4±5.6. A total of eight major themes emerged from the data: 1) burden of daily living impacts of HF, 2) important elements of HF treatment, 3) indicators that care is being managed well, 4) negative aspects of medication, 5) dealing with other health issues, 6) different types of HF treatments, 7) unmet treatment and support needs, and 8) self-education.
Conclusions: Several outcomes important to HF patients emerged, from physical limitations (e.g., limited recreational pastimes) to psychological issues (e.g., self-control in life). These outcomes were typically related to patients’ daily quality of living. Several unmet needs emerged, including financial assistance, reduced pill burden of prescribed therapies, and improved collaboration and communication among healthcare providers.
Author Disclosures: K.M. Richards: Research Grant; Significant; Novartis Pharmaceuticals. R. Sasane: Employment; Significant; Novartis Pharmaceuticals. S. Turner: Employment; Significant; Novartis Pharmaceuticals. A.V. Thach: None. C.M. Brown: Research Grant; Significant; Novartis Pharmaceuticals.
- © 2015 by American Heart Association, Inc.