Abstract 18829: Economic Self-sufficiency and Educational Attainment is Worse in Adult Congenital Heart Disease Survivors
Introduction: Among congenital heart disease (CHD) survivors, there is a distinct pattern of neurodevelopmental and behavioral impairment.
Objective: To compare attainment of self-sufficiency and its interaction with educational achievement in adult CHD survivors with sibling and general population controls.
Methods: Using Danish population-based registries this cohort study aimed to include all CHD survivors greater than 13 years born between 1963-1993. Comparison cohorts included: 1) A sibling cohort, and 2) A population cohort matched (1:10) on birth year and gender. We computed cumulative incidences of time to first full year of economic self-sufficiency, as well as completed vocational, high school, and higher education. Self-sufficiency was defined by Statistics Denmark standard; total income from all available sources greater than 50% of a student’s annual subsidy.
Results: We identified 10,259 CHD survivors, 8,634 full siblings and 101,653 population controls. The cumulative incidence of self-sufficiency at age 20 years for CHD patients (53.2%) was significantly lower than sibling (67.9%) and population controls (64.7%) (p<0.05 for both comparisons). By age 40, CHD survivors remained less self-sufficient (85.7%) than both comparison cohorts (sibling 96.3% and population 96.6%, p<0.05) (Figure). By age 30, CHD survivors were significantly less likely to attain vocational, high school, or higher education (9.9%, 26.6%, and 22.8%, respectively) than their siblings (11.4%, 31.1%, and 25.3%, p<0.05 for each comparison). Among those achieving these educational milestones, differences in self-sufficiency between CHD survivors and controls became non-significant by age 40.
Conclusion: CHD is associated with less economic self-sufficiency. This is not explained by differences in socio-economic status as demonstrated by comparison to sibling controls. This data suggests that educationally targeted therapies may improve self-sufficiency.
Author Disclosures: N.L. Madsen: None. B.S. Marino: None. J.G. Woo: None. S. Antonsen: None. J. Videbaek: None. M.S. Olsen: None.
- © 2014 by American Heart Association, Inc.