Abstract 18576: Areas of Disease Knowledge as Differential Predictors of Outcomes Among Adolescents and Adults With Congenital Heart Disease
Introduction: Adolescent and adult survivors of congenital heart disease (CHD) often have difficulty reporting diagnosis and surgical history, as well as reasons for follow-up care and disease heritability. However, aspects of disease knowledge associated with patients’ self-care or their health-related quality of life (HRQoL) are not well understood. The current study aimed to assess multiple dimensions of disease knowledge and their relationships with patient self-management and HRQoL among survivors of CHD.
Methods: Individuals with CHD (N = 185) were recruited from adult and pediatric cardiology clinics (93% recruitment rate). Participants were 15 to 39 years of age (M = 24.7 + 6.9) with simple (22%), moderate (44%), or complex (34%) lesions. Participants were asked to recall their diagnosis, surgical history, and current medications (RECALL), identify complications of CHD for which they are at risk and symptoms of those complications (RISK), and answer general questions about CHD, (e.g., duration of care, endocarditis, and heritability) (GENERAL). Disease knowledge was reported in percent accuracy. Measures of self-management included self-reported saturated fat intake (DIET) and frequency x intensity of physical activity (ACTIVITY). HRQoL was measured by the Physical (PCS) and Mental (MCS) Component Scales of the SF-36. Hierarchical regression analyses were conducted with age, lesion severity, RECALL, RISK, and GENERAL knowledge as predictors of self-management and HRQoL.
Results: RISK and GENERAL knowledge were the only significant predictors of DIET (β = -0.19, p = 0.038, β = -0.22, p = 0.009) and ACTIVITY (β = 0.20, p = 0.043, β = -0.21, p = 0.017). However, age (β = -0.18, p = 0.037) and RECALL knowledge (β = 0.18, p = 0.022) were the only significant predictors of PCS. None of the variables significantly predicted MCS.
Conclusion: This is the first study to report an association between disease knowledge and self-management among survivors of CHD. The findings suggest that understanding one’s future risks and general self-care may be more predictive of health behaviors than knowing personal medical history. Therefore, different aspects of disease knowledge may need targeting for intervention depending on the type of patient outcome.
- © 2013 by American Heart Association, Inc.