Abstract 18300: Development of the Minnesota Stroke Needs Assessment for Survivor and Caregivers
The Minnesota Stroke Needs Assessment (MSNA) was an initiative to determine the needs of survivors and caregivers after stroke. The purpose of this abstract is to describe the development of the MSNA surveys to assess and compare the needs of stroke survivors and caregivers. A preliminary list of needs was generated from a literature review and further refined with the aid of input from focus groups of survivors and caregivers. Two survey of needs were constructed, pretested, pilot tested, refined and then administered to survivors and caregivers who rated each need as none, somewhat and great. Factor analysis was performed to identify domains of need. Eighty-two items were factor analyzed with a sample of 281 survivors, and 95 items factor analyzed with a sample of 223 caregivers (age = 63, SD = 14, female = 70%) using the principal components method. For the survivors (age = 70, SD = 14, male = 52%, years since stroke = 3, SD = 3.2), 6 factors, retaining 51 items, which accounted for 54% of the total variance were extracted including disease specific information, health care information, psychological, physical services, and work/role. For the caregivers, 6 factors, retaining 66 items, which accounted for 56% of the total variance were extracted including physical needs, emotional needs, stress management, healthcare information, service/economic/work needs and recreational needs. The identified factors for both groups agreed to a large extent with broad areas of needs identified by the focus groups. Assessment of the original tools with the information provided by the factor analyses will allow refining and shortening of subsequent versions without the loss of any important domain of need. The shorter versions could be useful in assessing the needs of survivors and their caregivers in clinical settings.
- © 2011 by American Heart Association, Inc.