Abstract 15388: Living with a Congenital Heart Disease: Quality of Life, Psychosocial Adjustment, Psychiatric Morbidity and School Performance May be Affected, but Social Support Plays an Important Role in promoting Resilience
Introduction: Good care of congenital heart disease (CHD) allows patients to survive until a later adulthood, facing challenges for adjustment throughout life.
Hypothesis: Quality of Life (QOL) and Psychosocial Adjustment (PSA) are affected in some CHD patients. They are more likely to have psychopathological disorders and more prone to school failures. Social support (SS) is a protecting variable, promoting resilience. The aims of this investigation were to study QOL, Psychiatric Morbidity (PM), PSA, School Peformance (SP), Physical Limitations (PL), and SS of adolescents and young adults with CHD.
Methods: 86 CHD patients, 48 male, aged from 12 to 26 years (M= 18,52 ± 3,70), 51 cyanotic. Clinical and demographic history was collected. Participants were interviewed once on topics as SS, family educational style, self-image, PL and emotional adjustment, administered a psychiatric interview (SADS-L) and completed self-report questionnaires on QOL (WHOQOL-BREF) and PSA (YSR and ASR). One of their relatives filled the observational versions of the questionnaires (CBCL, ABCL).
Results: We found a 22,1% lifetime prevalence rate of psychopathology and 51.2% retentions in school (M= 1,68 year + 0.829). Comparing to normal population, our patients have better QOL in environmental (t=4.327; p=0.000) and social relationships (t=2.795; p=0.006) dimensions. Cyanotic patients showed worse QOL in environmental dimension (t=-2.120; p=0.037); Complex CHD reported more social (u = 600.000; p = 0.028), thought (u = 607.000; p =0.031) and externalization (u=586.500; p=0.021) problems. Patients who had surgery reported worse QOL in social relationships dimension (t=-2.506; p=0.014) and overall (t=-2.107; p=0.038), and more withdrawn behavior (u=303.500; p=0.009). Those with better SS revealed better QOL in psychological (t=2.893; p=0.005), social relationships (t=2.521; p=0.014), environment (t=2.871; p= 0.005) and physical (t=2.734; p=0.008) dimensions, and less withdrawn behavior (u=963.000;p=0.004) and social problems (u=904.500; p=0.024).
Conclusions: CHD patients seemed to be more prone to PM, worse PSA and SP, although SS plays a crucial role in all variables and in resilience.
- © 2011 by American Heart Association, Inc.