Abstract 19088: Social Burden and Life Style in Adults With Congenital Heart Disease
Objective: The potential burden of a congenital heart defect on adult life is scarcely investigated. Our aim was to evaluate whether the presence and severity of congenital heart disease (CHD) influences socioeconomic status, household situation and life style in the adult population.
Methods: Patients were randomly selected from CONCOR (n=11,047), the national registry of adult patients with CHD in the Netherlands, to complete a questionnaire addressing employment status, educational attainment, marital status & offspring, and life style. The reference group was derived from the Utrecht Health Project (n=6,810). Logistic regression models were used to adjust for age, gender and socio-economic status.
Results: A total of 1571 adult patients (51% male; median age 39 years (range 18-94)) with mild (45%), moderate (45%), and severe (10%) CHD completed the questionnaire (response rate of 87%). Employment rates were significantly lower among patients with mild, moderate, and severe CHD (61% vs. 70% vs. 65% respectively) than in the reference group (79%). The odds ratio (OR) for job participation with mild, moderate and severe defects vs. the reference group, was 0.64, 0.52 and 0.24 respectively (each p<0.05). Compared to the reference group, CHD patients had lower educational attainment (OR's of 0.80 for mild, 0.71 for moderate, and 0.31 for severe defects (each p<0.05)), and less often relationships (OR = 0.28, p<0.05). The CHD population smoked less (OR = 0.47, p<0.05), had more sports participation (OR = 1.22, p<0.05), less hypertension (OR = 0.60, p<0.05), and less obesity (OR 0.71, p<0.05) than the reference group.
Conclusion: Congenital heart disease in adulthood, even with mild defects, has substantial negative impact on societal perspectives. In contrast, adults with CHD have healthier lifestyles and less cardiovascular risk factors.
- © 2010 by American Heart Association, Inc.