Abstract 1417: Perceptions of Chronic Heart Failure Patients’ Health Status Prior to Hospitalization by Patients and Their Family Caregiver/Significant Others
Purpose: Perceived health status has been measured in chronic heart failure (HF) patients, but little is known if family caregivers/significant others (FC/SOs) have similar or different perceptions of the patients’ health status. Differences in health perceptions could influence the patients’ decision to seek care. The purpose of this study was to compare chronic HF patients’ and FC/SOs perception of the patients’ health status prior to hospitalization.
Methods: Forty hospitalized chronic HF patients and 40 FC/SOs were recruited to complete the Kansas City Cardiomyopathy Questionnaire (KCCQ). The questionnaire was administered to both patients and their FC/SO during the patients’ hospitalization to measure perceptions of the patient’s health status 2 weeks before hospitalization. The KCCQ is a questionnaire that quantifies physical function, symptoms, social function, self-efficacy, and QOL for patients with HF. A version of the questionnaire with modified wording was used for FC/SOs to respond about their perceptions of the patients’ health status. Patient participants were primarily white males with a mean age of 62.0 (SD=15.6). Mean LVEF of the patients was 27.3 % (SD=17.8). The FC/SO participants were primarily family members who were caregivers with the majority being white females; who had a mean age of 57.6 years (SD=12.9).
Results: Responses from patients and FC/SOs were highly correlated on their perceptions of the patient’s level of physical function (r=.75), symptom frequency (r=.75), symptom burden (r=.70), and moderately correlated on perceptions of QOL (r=.59), self-efficacy (r=.57), social function (r=.53), and symptom stability (r=.46). The overall status summary scores were highly correlated (r=.78) with both the patients and the FC/SOs reporting that the patients’ health status was poor.
Conclusions: The health status of chronic HF patients is perceived similarly by both patients and FC/SOs as being poor. However, both the patients and the FC/SOs perceived the patient to have high self-efficacy, which meant they both believed that the patient had a good understanding of how to manage their disease. Further research is needed to understand if these perceptions influence decision making to seek appropriate and timely care.
This research has received full or partial funding support from the American Heart Association, National Center.